Thursday, September 27, 2012

Revival

I am so behind on your blog.  Really I am behind on everybody's, but yours more than the rest. Catching up on the last several months seems like a huge task so I put it off, putting me further behind, which overwhelms me all the more. See this cycle I am stuck in?

Even though it doesn't show, your blog is special to me. Now that Luke is gone I am so grateful for his blog and regret that I didn't write at all for his last month. My only consolation is that the time I didn't spend recording memories was time spent making them. I know the day will most likely come (hopefully very far from now) when your blog will have just as much importance as Luke's does now. So my plan is to just jump in and start writing again and then go back and fill in the last nine months with whatever I can, whenever I can.

So here we go...the revival of your blog starts......NOW!

Wednesday, September 5, 2012

Suture Situation

There is one suture from your ptosis surgery nearly four years ago that occasionally gets infected.  It swells up and a hard lump forms in the middle of your brow. A couple weeks of antibiotics usually takes care of it.  But this last time the meds didn't help. The pressure from the pus got so great that it formed a pimple on your brow.  This pimple popped and scabbed. The pus from the still present infection kept the scab moist from underneath, making it easy to accidentally scrape off when changing your clothes or in the bath. After a couple months and several rounds of new scabs, I can now plainly see the suture whenever a scab doesn't cover it.

With Luke's medical issues and then death, many things that would otherwise have been considered priority were neglected. This is one of those things.  I should have had it taken care of much sooner, but it is finally at the top of my to-do list.

So today we saw Dr. U and he agreed, it needs to be removed.  The plan is to have a surgery to remove the suture, let it heal completely and then go back in to sling the lid up if necessary.  He says occasionally there is enough scar tissue that there is no need to repeat the surgery.  Definitely hoping that is the case for you!

Friday, June 22, 2012

Birthday Princess

You came home from school today with a birthday crown.  Four looks good on you.

Sunday, May 13, 2012

Mother's Day 2012


You are the shnook who made me a mother almost FOUR years ago! My does time fly. It has been the most challenging and rewarding four years I could imagine.  Thanks for being pure sweetness all along the way.  And thanks for being the one child willing to smile in my attempt to take a photo with the three of you.  I can always count on you to be cheery. You are my superstar.

Saturday, March 31, 2012

Let it rain!



Over the course of this entire school year, it has only rained three times as we loaded you up on the school bus.  This was one of those mornings.  Fortunately, we have this nifty wheelchair rain jacket.  It keeps you cozy dry...assuming you don't stick your hand out of the hole to feel the raindrops.You sure are a cute one Audrey Lee.

Wednesday, March 14, 2012

My Little Pony




I am certain you have the most adorable pony tail ever.  Too bad it only stays put for about 30 seconds. Daddy calls you "Herbal Essence" because your hands are constantly in your hair, mussing, pulling and twisting.  I'm hoping now that you have seen how cute it is you will decide to leave it alone.

Tuesday, January 31, 2012

Brothers and Sister


You are going to love your new little brother when he comes home.  He makes all kinds of squeaky, silly sounds that are perfect for your sense of humor. I remember how much you immediately loved Liam.  And I can't wait to see how you react to Luke.

Here's a walk down memory lane from the day we brought Liam home.


Here you reached so purposefully for him...and gave him his first lesson on learning your "sick" signs.