Friday, February 26, 2010

"Tu-Tu" Cute!

It's Go Texan Day...this Texan didn't actually go anywhere, but that doesn't mean you couldn't get all dressed up. You feel so pretty in this skirt. Yee-haw!

Tuesday, February 23, 2010

Labs...didn't like 'em in college, don't like 'em now.

(Your father came up with this post title. I laughed.)

Today I finally received the results of the cholesterol bloodwork we took a couple weeks ago. It needs to be over 100 to be normal, 50 and below is considered severe, and usually under 20 children are miscarried or die shortly after birth. When you were diagnosed at 6 weeks, your level was 22--probably lower at birth. At about 6 months your level was 33. We have attempted to check the levels several other times, but you are so difficult to stick that we weren't able to get the blood. So this is the first test in a very long time. The number came back 4.9. I told our nurse that there was no stinkin' way that was right, and it must not have had the formula applied to convert it to the number we are usually given. She said she originally thought the same thing but she checked with the technician, and he said it's right. I still don't think it's possible. We decided something must have gone very wrong with the test, and are going to redo it next time we go to TCH. Goodness.

We did find out that you have several food allergies. Of the 6 things we tested for, you are allergic to 4. Wheat, egg whites, egg yolks, and peanuts. None are a life threatening allergy, so that means we still haven't found what you reacted so strongly that one time. Whatever that was would have cause anaphylactic shock had you swallowed it. The search continues...

And you are Vitamin D insufficient. Darn.

These results aren't really a big problem, just surprising. I don't know why that would be my reaction. I guess it is because for the first several months we were running every test we could think of and I began to expect something to be wrong. Now with tests so far apart and your seemingly good health, I am caught off guard when we have one more thing to deal with. I keep thinking that eventually you will catch a break and get some good news!

Saturday, February 20, 2010

Fly Me To The Moon

You love for Daddy to swing you in his arms. You laugh and laugh.

Monday, February 15, 2010

Bitten by the Love Bug

On Sunday, you got all dressed up for Valentine's Day and for Liam's baby dedication. You were the cutest little lovebug I have ever seen in your red pettiskirt!

Friday, February 12, 2010

No Pressure

Today we went to TCH for an exam under anesthesia to check your eye pressures for glaucoma. Everything went great! No intubation, just a gas mask. And it only took three tries to get an IV. Your numbers looked good, so I was hoping that meant we could stop the eye drops. No such luck. Even though another eye doctor suspects you never had glaucoma in the first place, this one is afraid to take you off the drops and risk your pressures rising. I asked him if that meant you would be on the drops forever...he said until you got bigger. So forever. Boo. The drops aren't the worst, by any means, but you definitely don't care for them. And it would have been nice to have one less thing to do twice a day and be one step closer to "normal". At least now we know to expect them for a very long time.

Tuesday, February 9, 2010

Push My Buttons

Yay Audrey!! This afternoon I was sitting in the living room with Bubby while you were taking a nap, and all of a sudden I heard music coming over your monitor. I realized you had started your crib "aquarium" all by yourself! And then you turned it off. It was the first time that you have ever done that, and I am SO proud of you!

Monday, February 8, 2010

Audrey Longstocking

This might be the cutest face I have ever seen. You are so precious in your leggings and pigtails.

Thursday, February 4, 2010

Yoga Baby

Here you sit with your legs crossed, looking down. For us this is a big deal. You have been putting so much effort into your therapy sessions with a sweet attitude, and your hard work is beginning to show. Your neck is not nearly as tight as it used to be, and when we tuck your chin you don't fight it. Sometimes you even tuck it on your own! But the motivation has to be great...usually Liam can do the trick.