Saturday, January 29, 2011
I love that you can entertain yourself in this way. I am going to have to do some research to see what similar apps are available. We may have just opened up a whole new world for you!
Thursday, January 27, 2011
After a nice lunch with Daddy, Grandpapa, Honey and Liam (well, Liam got a little melty but everyone else was pleasant), we swung by TCH. I left you kiddos in the car with Honey while I ran up to Dr. L's office. She gave me a much needed new button for your tummy and some special wipes to hopefully help your bottom heal.
Home for quick naps and then we loaded back up to meet Daddy near the church for dinner before his meeting. It was a long but productive and fun day.
Tuesday, January 25, 2011
I was so desperate to make it better that I made a mistake. I let your bottom air out for a bit today, checking you every couple minutes to make sure you didn’t need a wipe down. After about an hour, things looked a little better. At least your bottom wasn’t weeping or bleeding anymore. So I thought, maybe, since you were calm I could try a wipe that was sent and you wouldn’t react as strongly as you would if I were just changing your diaper and you were already upset. My reasoning was that often when you get shots or blood drawn, you don’t really fuss because it was fast and before you really realized what happened, it was over. And I figured if a little bit of pain each diaper change for the next couple of days saves you a couple weeks of pain down the road, it might be worth it. So I got out the wipe, opened it, and was hit by the smell of alcohol. I swiped it across your bottom quickly and waited for your reaction. It was delayed, but it when it came, it was big and loud and angry. And the stupid part was these wipes don’t even create the type of barrier the No Stings do. All that for nothing. I’m sorry Boo. I won’t try them again. We will call Dr. L and get a box of No Stings to hold us over.
Tuesday, January 18, 2011
This weekend we went to one of your friend’s birthday parties. Carson turned two! It was a Cars themed party and there were cute decorations, games and party favors. Liam got a hot wheels car and some yummy treats in a Cars sippy cup. They wanted to give you something you could actually use, so in your cup were these adorable jammies that say “Still a little sleepy”. I was so touched by their thoughtfulness. We would never EVER expect customized party favors for you. But it was the unexpectedness that made it so sweet. Thanks Carson, happy birthday friend!
(This, by the way, is not a cute picture. We had just taken your contacts out and well...sorry.)
Sunday, January 16, 2011
Thursday, January 13, 2011
On a sadder note, the blog design really looks wrong on here. Guess you know what we will be working on tomorrow.
Congratulations on being my first iPhone task! Besides calling, texting, emailing, face to facing, and photographing Daddy (all while he was sitting next to me on the couch).
Wednesday, January 12, 2011
We dropped Liam off at school this morning and headed out to get some things done, just you, me and Daddy. Like the old days. We went to Starbucks and visited a long time. We didn’t have to chase anyone around, so we were able to just sit and hold you. Then we exchanged some things at the store, saw Aunt Shelby and Papaw at the office, and went out to eat before we picked up Brother.
Daddy and I used to do everything together. Any little chore--pick up dry-cleaning, fill up on gas, run to the store for a couple items for dinner, rent a movie—we went together. When you were born, it just didn’t make sense to pack you up when one of us could go and be back before you were ready. While you are worth the sacrifice, we miss doing those little things together. But now being used to packing up two kids, I feel like it takes us no time to get either of you out the door. Plus, I think we are getting faster, or you are getting easier, because it just doesn’t seem to be as big a hassle anymore. So Daddy and I enjoyed spending time together getting the mundane things done. But we also missed Liam and were happy to pick him up when school was over. He might a lot of work, but he sure is entertaining!
Tuesday, January 11, 2011
I really hate blogger. One of my best pieces of advice to you...go with Wordpress.
Somehow, after fidgeting and tweaking and adjusting, my columns came out MORE narrow. It goes without saying that this is not my area of expertise. But I am tired and I can hear my bed calling my name (or maybe that's Daddy). So for now, your blog is under construction.
Sunday, January 9, 2011
Here are your current growth charts. They are a little light, but we can make out the important parts.
Your head circumference actually makes it onto the chart, thanks to your hydrocephalus. It is still less than 3 percentile thanks to the microcephaly. (Ignore the obvious outliers...although you may prefer it, your head has not shrunk).
Here is length. Definitely still less than 3rd percentile, but you follow your own little curve quite nicely. (Again, you haven't ever shrunk. Length is particularly hard to measure on you since you ball up as soon as you get on the table).
Weight. See those tiny black dots on the very bottom left hand side? That's you, nowhere near on the chart. Tiny little shnook.
Friday, January 7, 2011
Yesterday we went to see Dr. L with Honey, and of course Liam. This is the first time we have seen Dr. L in 6 months! Truly amazing. It was a later appointment, supposed to start at 3:15. She had an early morning admission which set her behind all day, so we didn’t get to see her until closer to 5. But Dr. L is worth it. She really takes the time to sit, go over all of our issues, write the orders for all the tests, and supplies, and scripts. I feel like everything has been covered by the time we leave, and never feel rushed.
By the time we were finished the CCC side of the hospital was shutting down and we couldn’t get those tests she ordered taken care of. We will need to go back one day soon to have X-rays of your hips done, a new G-button, and draw blood for a cholesterol test. You did get two shots—flu and a routine immunization. As always you were as tough stuff. And, may I just say, beautiful.
Wednesday, January 5, 2011
I needed to miss him during the day.
He needed to socialize with friends and other adults.
You needed me all to yourself for a bit.
From the moment we dropped him off, you were jabbering away. I think you knew it was just us. You sure do love your brother, but everyone needs a break occasionally. We ended up running around with Aunt Shelby for the day, and you were ok with that. Your great mood carried over to the evening where you signed “mama” and “dada” repeatedly and told us everything on your mind.
Next week, I plan to bring you home while Liam is at school and work on stretching, standing, sitting, reaching…basically have PT/OT boot camp until you need to take a quick nap and we go pick him up. So rest up…my MDO’s are going to be your major workout days!