Talking Tom

I just discovered you love the Talking Tom app on my iPhone. Tom repeats everything he hears, just faster and at a higher pitch. I downloaded it for Liam, who thinks Tom really is his pet cat. Every time Liam sees him, his face lights up and he yells “Hi!”—then Tom greets him back. They could talk forever. It didn’t occur to me until today that you would get a kick out of it too. So while I worked around the house, I set up my phone next to you and waited to see what happened. Of course, you thought he was hilarious. You can make him do things like drink milk or scratch the screen, or you can pull his tail, punch him, make him purr or cough up a hairball—just by touching the screen. These options make silly sounds and it is sensitive enough for you to do all by yourself. Ironically, you think it is funniest when he throws up the hairball. I thought you have heard enough of that sound for it to lose its charm. Maybe it is just funny that you aren't the one throwing up for a change.

I love that you can entertain yourself in this way. I am going to have to do some research to see what similar apps are available. We may have just opened up a whole new world for you!

Brace Yourself

You have lengthened out quite a bit lately, but have lost a bit of weight. The result is that your legs are too thin and your AFO’s are too short for them to be effective. A “normal” kid will get new AFO’s every 6 months or so (it has been almost exactly 6 months for you), but I truly expected those to last you for a very long time. The technician who fitted you for new braces today thought I needed to adjust my expectations. I think she realized what I meant when she saw that your foot hasn’t grown at all. We were able to use your old braces to save a lot of time in making the new ones for that reason. We were finished in under an hour, and went on to see Daddy for lunch. Today is his birthday!

After a nice lunch with Daddy, Grandpapa, Honey and Liam (well, Liam got a little melty but everyone else was pleasant), we swung by TCH. I left you kiddos in the car with Honey while I ran up to Dr. L's office. She gave me a much needed new button for your tummy and some special wipes to hopefully help your bottom heal.

Home for quick naps and then we loaded back up to meet Daddy near the church for dinner before his meeting. It was a long but productive and fun day.

Stinging Sensation

Your bottom is so sore. It makes you cry so hard that you get phlegmy and then gaggy (although so far nothing has come back up). We have ordered No Sting Barrier Films from our medical supply company, but so far they are having a hard time getting us the right brand. They keep sending similar products, but it really needs to be the ones by Cavilon. When they say “No Sting”, they mean no sting. These other wipes are alcohol based and even say on the wrapper, “Will sting if comes in contact with open sores.” Well your whole bottom is an open sore.

I was so desperate to make it better that I made a mistake. I let your bottom air out for a bit today, checking you every couple minutes to make sure you didn’t need a wipe down. After about an hour, things looked a little better. At least your bottom wasn’t weeping or bleeding anymore. So I thought, maybe, since you were calm I could try a wipe that was sent and you wouldn’t react as strongly as you would if I were just changing your diaper and you were already upset. My reasoning was that often when you get shots or blood drawn, you don’t really fuss because it was fast and before you really realized what happened, it was over. And I figured if a little bit of pain each diaper change for the next couple of days saves you a couple weeks of pain down the road, it might be worth it. So I got out the wipe, opened it, and was hit by the smell of alcohol. I swiped it across your bottom quickly and waited for your reaction. It was delayed, but it when it came, it was big and loud and angry. And the stupid part was these wipes don’t even create the type of barrier the No Stings do. All that for nothing. I’m sorry Boo. I won’t try them again. We will call Dr. L and get a box of No Stings to hold us over.

Party Favor

This weekend we went to one of your friend’s birthday parties. Carson turned two! It was a Cars themed party and there were cute decorations, games and party favors. Liam got a hot wheels car and some yummy treats in a Cars sippy cup. They wanted to give you something you could actually use, so in your cup were these adorable jammies that say “Still a little sleepy”. I was so touched by their thoughtfulness. We would never EVER expect customized party favors for you. But it was the unexpectedness that made it so sweet. Thanks Carson, happy birthday friend!

(This, by the way, is not a cute picture. We had just taken your contacts out and well...sorry.)

Vocalize

Lately you have been so vocal. You happily chatter away with me during the day when you feel good. And when you don't, there is no mistaking it. You fuss and cry until something changes. Overall you are still super tolerant. But a car ride will set you off every time (I have no idea why other than maybe it hurts your bottom) and if enough time passes without you getting attention you let us know. Which is really good progress. It is important for you to tell us how you feel and what you need.

iPhone Fun

Audrey! Daddy and I just received our birthday iPhones and immediately I discovered your blog can be updated from here! This will go a long ways in helping me keep my new year's resolution. Awesome.

On a sadder note, the blog design really looks wrong on here. Guess you know what we will be working on tomorrow.

Congratulations on being my first iPhone task! Besides calling, texting, emailing, face to facing, and photographing Daddy (all while he was sitting next to me on the couch).

Staycation

Daddy is taking the rest of the week off for a mini vacation. The original plan was to take some time off between Christmas and New Year’s in Galveston. They have the Festival of Lights which I thought you and Bubby would love. But since everyone got sick, it wasn’t worthwhile. This week, nothing fun is happening in Galveston so I thought about going to San Antonio. There is a fabulous special needs amusement park called Morgan’s Wonderland. Everything there is completely handicap accessible. I know you and Liam both would love it. Then we could have spent a day at Sea World (one of Mama’s faves) and a day at the zoo. Unfortunately, Morgan’s Wonderland and Sea World are both closed until early March. So those will have to wait a couple more months and a “stay-cation” it is.

We dropped Liam off at school this morning and headed out to get some things done, just you, me and Daddy. Like the old days. We went to Starbucks and visited a long time. We didn’t have to chase anyone around, so we were able to just sit and hold you. Then we exchanged some things at the store, saw Aunt Shelby and Papaw at the office, and went out to eat before we picked up Brother.

Daddy and I used to do everything together. Any little chore--pick up dry-cleaning, fill up on gas, run to the store for a couple items for dinner, rent a movie—we went together. When you were born, it just didn’t make sense to pack you up when one of us could go and be back before you were ready. While you are worth the sacrifice, we miss doing those little things together. But now being used to packing up two kids, I feel like it takes us no time to get either of you out the door. Plus, I think we are getting faster, or you are getting easier, because it just doesn’t seem to be as big a hassle anymore. So Daddy and I enjoyed spending time together getting the mundane things done. But we also missed Liam and were happy to pick him up when school was over. He might a lot of work, but he sure is entertaining!