August 19

We took our weekly trip to the med center yesterday, this time to see GI. I was hoping he could give you a med to increase motility and decrease the vomiting, but no such luck. The meds on the market these days aren’t effective enough to justify the risk of side effects. While there, the results of your EEG came up in our conversation, and I found out that your test did not show normal results at all. There was no focal seizure point, since you didn’t seize during the test, but there were “curious abnormalities”. I am totally disappointed, but not even a little surprised. Many SLOS kids have seizure activity, and with the way you have been acting, I couldn’t think of another possibility. So I made a trip upstairs to see our pediatrician and she is going to try to get us in to see neurology sooner than January. The good news is that you are definitely done with dilations! Daddy doesn’t have to probe you, hopefully, ever again. In fact, we don’t even have to go back to see Dr. Kim for 12 months. We love Dr. Kim, but we will be ok with not seeing him every clinic he has!