We are still in the hospital…I was hoping, once again, we would be home by now. So this time, I mean it when I say I am not guessing when we will finally bust out of here. The pod you are in is a regular revolving door—babies come and babies go so quickly. It needs to revolve in our direction.
Your feeds are up to 36 CCs over an hour every three. Halfway there. It took 10 days to get to this point—at Women’s it took 4 days to go from 0-65 CCs. Your reflux has been really good up until yesterday. You spit up really big a couple times in the night—I am hoping it was just a fluke and you are feeling better today. The renal doc came to look at your kidneys yesterday to see if she can find the cause of your high BP. She didn’t seem concerned, telling me that your BP isn’t high enough or consistent enough to warrant any meds and that she didn’t know if the high BPs were while you were upset. I told her your BP is usually only taken once, maybe twice, a day and always when you are asleep. Then they will take it several times in a row until they get the lowest number possible, and that is the one they write down. They will take it more often when I ask, but I don’t know if they write it down or not. But all the numbers I have seen are well above the normal range for infants. So now the nurses are supposed to take BP every 8 hours and document other outside factors also, such as whether or not you are fussy and if the cuff was on the arm or the leg.
Your ophthalmologist should come today to do a refraction test! You have peeked your eyes at me a few times in the past two days. I keep telling you not yet, just a little longer! I am anxious for you to see, hoping the visual stimulus helps you to perk up a little. A developmental doc will check you out today also to let us know if you are behind—there is a little concern over your weak muscle tone. Still slowly working with OT. There is some progress, you are much more tolerant of the bottle in your mouth.
Daddy has been missing you lately. This week is a busy one for us and he doesn’t get to spend as much time with you as he wants. But when you are together, you two are pretty cute!